Sunday, July 29, 2012
Any news regarding clinical trials anywhere in the world is always welcomed by any brain tumour sufferer or family of one, especially if that person is suffering one of the most aggressive forms i.e. Glioblastoma Multiforme (GBM).
Glioblastoma Multiforme is one of the most common types of primary brain tumours and also one of the most aggressive. In the UK, the present time of survival following diagnosis is between 12-18 months, a sentence no one wants to hear!
In the US, this trial has already been undertaken and it has shown to significantly extend the life of the patient, without any toxic side effects, to an average survival time of 3 years. Not much more I hear you say but still progress. Any extra time to do what you want and to be with who you want to be with for that extended period will always be a bonus to me if my quality of life can also be sustained.
A leading Neuro-Oncologist from Kings College Hospital will be undertaking these trials and what they entail is using the patients tumour to develop a personalised vaccine that is then injected into the patients arm. In the case of Glioblastoma Multiforme patients, they usually undergo surgery to remove as much of the tumour as possible and then the removed tumour is used to develop the vaccine.
Great news for the UK and for the fight against brain tumours. More research is still required for trials such as this and as we can see from the Brain Tumour UK site, more action is required from parliament as brain tumour research is badly underfunded in the
For more information on the 'Brain tumour patients and carers join mass lobby of Parliament' story from Brain Tumour UK, visit:
For more information on the new trials being undertaken by King’s College London, visit:
Thursday, July 19, 2012
Today, six years ago, a fabulous neurosurgeon was delving about in my head. He successfully found my brain and removed the intruder camping out on top completely.
Six years on, my head still itches continuously and my hair grows thicker on that side of my head but I have no side effects that I know of that I can put down solely to the removal of my meningioma brain tumour.
LIFE IS GREAT!
Here's to another great year!
Monday, July 9, 2012
Can I please ask that as many of you as possible please sign Bill Tarmey's e-petition.
Brain tumours kill more people under the age of 40 than any other cancer, including more children and life expectancy for people with brain tumours has not increased for 40 years; they are responsible for an average loss of life of over 20 years.
This petition calls on the UK Government to take action to:
Improve brain tumour diagnosis.
Enforce best practice in brain tumour care.
Increase the proportion of cancer research spending on brain tumours.
To make a real difference we need over 100,000 people to sign the e-petition.
Please sign Bill’s e-petition here and spread the word.