Anybody else had experience of 'awake craniotomy with mapping'?
Showing posts with label meningioma. Show all posts
Showing posts with label meningioma. Show all posts
Friday, September 19, 2014
Awake Craniotomy With Mapping
http://www.dailymail.co.uk/health/article-2758335/Mother-inoperable-brain-tumour-given-just-months-live-survive-15-years-undergoing-radical-surgery-US.html#i-d0bafddf918253cd
Anybody else had experience of 'awake craniotomy with mapping'?
Anybody else had experience of 'awake craniotomy with mapping'?
Tuesday, February 18, 2014
Sight Saved!
A Dad'd sight has been saved after surgeons remove a tumor through his nose.
Gross thought I know but I remember reading that Russell Watson had one of his tumors removed via his nose also. Seems to be so much less intrusive and it would appear that the recovery time is certainly reduced.
Nice to read of a successful outcome but also comes with a warning! Don't put off a visit to the doctor if you are suffering continual headaches, especially if these are accommpanied by vision problems.
Take a look at this article on the following link:
http://www.parentdish.co.uk/2014/02/13/dads-sight-saved-after-surgeons-remove-tumour-through-his-nose/?icid=maing-grid7|uk|dl7|sec3_lnk2%26pLid%3D243013
Gross thought I know but I remember reading that Russell Watson had one of his tumors removed via his nose also. Seems to be so much less intrusive and it would appear that the recovery time is certainly reduced.
Nice to read of a successful outcome but also comes with a warning! Don't put off a visit to the doctor if you are suffering continual headaches, especially if these are accommpanied by vision problems.
Take a look at this article on the following link:
http://www.parentdish.co.uk/2014/02/13/dads-sight-saved-after-surgeons-remove-tumour-through-his-nose/?icid=maing-grid7|uk|dl7|sec3_lnk2%26pLid%3D243013
Wednesday, July 28, 2010
GREAT NEWS!
Went for my MRI last Friday and picked up the results Monday. I think from the big smile on my face you can see the outcome. No sign of a brain tumour anywhere in there I'm pleased to report. I can settle again now until the next time I feel the need to banish the niggles.
My fabulous husband took me out for a lovely meal - seafood platter no less all washed down with a beautiful bottle of Barollo - yummy!
Friday, November 7, 2008
Gene Link Found - Brain Tumour Research
Research published in the latest edition of the Journal of the National Cancer Institute reveals that a mutation has been discovered in a DNA repair gene which may increase the risk of developing the rare type of brain tumour called Meningioma.
More than 7,500 people are diagnosed with malignant or benign brain tumours in the UK each year. Meninigiomas account for over 30 per cent of these, yet little is known about the cause of the disease which tends to affect older people, and women. It is reported that the mutation found in the DNA repair gene may account for 16 per cent of meningiomas.
The new study examined genetic differences in the brains of people from four European countries. Data from patients with meningiomas was compared with healthy individuals and a new region associated with meningioma risk has been identified.
This research into gene changes offers progress towards early non-invasive diagnosis of the disease as opposed to the present situation where biopsy is the only true diagnosis.
Interesting results. Well done Cancer Research UK. Take a bow and keep up the good work.
More than 7,500 people are diagnosed with malignant or benign brain tumours in the UK each year. Meninigiomas account for over 30 per cent of these, yet little is known about the cause of the disease which tends to affect older people, and women. It is reported that the mutation found in the DNA repair gene may account for 16 per cent of meningiomas.
The new study examined genetic differences in the brains of people from four European countries. Data from patients with meningiomas was compared with healthy individuals and a new region associated with meningioma risk has been identified.
This research into gene changes offers progress towards early non-invasive diagnosis of the disease as opposed to the present situation where biopsy is the only true diagnosis.
Interesting results. Well done Cancer Research UK. Take a bow and keep up the good work.
Tuesday, August 26, 2008
MRI Results
The exam was complete and I nervously asked the technologist if all looked good and clear. As is the usual procedure, she advised that the Radiologist had been down to have a quick look and had been out to speak to my husband.
The pulse quickened and my mouth went dry until I saw her smile. She obviously sensed my concern and fear and smiled the smile of relief and success, not the smile of sympathy or concern. This girl had been on the same path with me 2 years earlier and knew what they had found then so she must have felt a small amount of exhilaration that the images were clear. I cannot imagine what turns up in their day to day examinations. Nobody likes to be the bearer of bad tidings. They operate the equipment that is advanced enough to help diagnose a problem. Discovery is one thing, fixing it is another!
I left the MRI suite to be greeted by my smiling husband Roy. All clear he said - NO BRAIN TUMOUR - congratulations! Once again I burst into tears, but of relief this time! All that was left was to pick up the report the following day. I had studied the pictures in disbelief the first time so was really looking forward to looking at the new set.
ABSOLUTELY FABULOUS!
The pulse quickened and my mouth went dry until I saw her smile. She obviously sensed my concern and fear and smiled the smile of relief and success, not the smile of sympathy or concern. This girl had been on the same path with me 2 years earlier and knew what they had found then so she must have felt a small amount of exhilaration that the images were clear. I cannot imagine what turns up in their day to day examinations. Nobody likes to be the bearer of bad tidings. They operate the equipment that is advanced enough to help diagnose a problem. Discovery is one thing, fixing it is another!
I left the MRI suite to be greeted by my smiling husband Roy. All clear he said - NO BRAIN TUMOUR - congratulations! Once again I burst into tears, but of relief this time! All that was left was to pick up the report the following day. I had studied the pictures in disbelief the first time so was really looking forward to looking at the new set.
Monday, August 11, 2008
2 YEARS ON
I thought it was about time I did a little follow up to the Eviction day to stress that it is 2 years on. Whilst writing my Ebook I have learnt a great deal about this mystical tumour and I have also read many peoples stories. We read a report or something crops up in the news and it rarely gives the whole story. You may read a caption like 'The Use of Mobile Phones has been linked to Brain Tumours'. Well as you can see from a previous entry of mine on this very subject, this headline is true but slightly misleading.
You may be like me, and as far as I thought about it prior to my own diagnosis, I really didn't know there were many types of brain tumour and in fact had never heard of a Meningioma. I certainly didn't want to think about the possibility of having one and didn't know that there were different grades and that some were benign and some were cancerous. I just truly thought that they were all something that nobody wanted because they spelt out a definite dangerous situation.
So having painstakingly read through as much information as I could I came to the conclusion that it would be a sensible thing to have a follow up MRI test this year even though my Neurosurgeon felt it was totally unnecessary.
You may be like me, and as far as I thought about it prior to my own diagnosis, I really didn't know there were many types of brain tumour and in fact had never heard of a Meningioma. I certainly didn't want to think about the possibility of having one and didn't know that there were different grades and that some were benign and some were cancerous. I just truly thought that they were all something that nobody wanted because they spelt out a definite dangerous situation.
So having painstakingly read through as much information as I could I came to the conclusion that it would be a sensible thing to have a follow up MRI test this year even though my Neurosurgeon felt it was totally unnecessary.
Monday, July 14, 2008
How It All Started
14/7/2006 - Having visited my doctor 2 days previously with a stange complaint I was back to see him again, not feeling ill but with a mystery complaint. That is when it all started and by the end of the day I was told I had my very own space invader.
So how do you know whether the strange things that are happening to you mean you have a brain tumour? The truth is we don't always recognise symptoms because people experience different things. Raised intracranial pressure can cause headaches, visual problems and vomiting. Mood swings and changes in behaviour are general signs of a brain tumour and many people experience epileptic fits as an early symptom. I don't think I experienced any of these but I did have something funny going on with my left leg!
So how do you know whether the strange things that are happening to you mean you have a brain tumour? The truth is we don't always recognise symptoms because people experience different things. Raised intracranial pressure can cause headaches, visual problems and vomiting. Mood swings and changes in behaviour are general signs of a brain tumour and many people experience epileptic fits as an early symptom. I don't think I experienced any of these but I did have something funny going on with my left leg!
Sunday, July 13, 2008
My Birthday
It was my birthday on 30th June and although normally this would be nothing too exciting to write home about, I am willing to share with you that it was my 50th Woo Hoo!!
Birthdays and anniversaries come and go and we either sing and shout or hide away for the day. I celebrated in the normal fashion but didn't go over board because I have an even bigger anniversary coming up next week and I really do want to sing and shout about that:
July 19th will be two years since I had my Brain Tumour Removed!
I certainly think that is worth a laugh!
Check back into my blog on Monday 14th and I'll give you a preview into my life two years ago.
Bye for now
Lynda
Birthdays and anniversaries come and go and we either sing and shout or hide away for the day. I celebrated in the normal fashion but didn't go over board because I have an even bigger anniversary coming up next week and I really do want to sing and shout about that:
July 19th will be two years since I had my Brain Tumour Removed!
I certainly think that is worth a laugh!
Check back into my blog on Monday 14th and I'll give you a preview into my life two years ago.
Bye for now
Lynda
Friday, June 20, 2008
So What is a Meningioma?
Well, put simply, it is a tumor of the Meninges.
Where are the Meninges? The Meninges are membranes that protect our brain and spinal cords. They consist of thin sheets of body tissue and act as a protective shield to our brains and spinal cords.
Nobody has yet come up with a conclusive reason as to why they occur and research continues to unravel the mystery. Certain possibilities have been put forward, such as mobile phone usage and hormone replacement therapy recently, but as yet nothing is a certainty.
Research so far has concluded that meningiomas make up nearly 1 in 5 of all primary brain tumours, they are most common in women (A strike for me) and they are most likely to be found in people middle aged and older (Another strike for me - middle aged I mean!). Not a lot to go on really considering this affects a large proportion of the human race.
Meningiomas tend to favour the cerebral hemispheres of the brain but can start in any part of the brain or spinal cord.
On the positive side (the side I obviously favour), malignant meningiomas are VERY rare. Most meningiomas are benign (non cancerous) and grow slowly and the cells do not spread from the original site. It is often possible to completely remove meningiomas with surgery but it depends on the location and accessibility.
Until next time - Enjoy Today.
Where are the Meninges? The Meninges are membranes that protect our brain and spinal cords. They consist of thin sheets of body tissue and act as a protective shield to our brains and spinal cords.
Nobody has yet come up with a conclusive reason as to why they occur and research continues to unravel the mystery. Certain possibilities have been put forward, such as mobile phone usage and hormone replacement therapy recently, but as yet nothing is a certainty.
Research so far has concluded that meningiomas make up nearly 1 in 5 of all primary brain tumours, they are most common in women (A strike for me) and they are most likely to be found in people middle aged and older (Another strike for me - middle aged I mean!). Not a lot to go on really considering this affects a large proportion of the human race.
Meningiomas tend to favour the cerebral hemispheres of the brain but can start in any part of the brain or spinal cord.
On the positive side (the side I obviously favour), malignant meningiomas are VERY rare. Most meningiomas are benign (non cancerous) and grow slowly and the cells do not spread from the original site. It is often possible to completely remove meningiomas with surgery but it depends on the location and accessibility.
Until next time - Enjoy Today.
Sunday, June 1, 2008
My First Post - Nearly Ready To Launch
I am so excited. I have just completed my first ever E-book, all on my own, on my very favourite subject at the moment - my brain tumour and it will be ready for launch next week and hopefully making some useful cash contribution to brain tumour research.
I am really hoping it will help any of you out there in Blog land who may have been diagnosed or know someone who has because it is a very scary time and this is a positive account to offer you some encouragement. I will be back during the week to let you know more....
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