My Brain Tumour

Meningioma Brain Tumor Symptoms

2012-01-20T13:25:00.002+02:00

One of my friends half-jokingly estimated that brain tumour symptoms account for far more medical problems than actual brain tumours. As a neurologist, he was referring to the volume of patients who come in afraid for their lives as soon as they get what they think is a symptom of brain tumours. The problem is that almost any complaint, from a headache to partial paralysis of the body and beyond, can be a brain tumour symptom.

Nonetheless, there are many brain tumours symptoms, he explained, that should cause concern. If, for example, you suddenly start to have chronic and unexplained headaches, it is a good idea to see a neurologist. Although there are many things that can cause severe headaches besides tumours, still, they are one of the most common of brain tumour symptoms. Out of all the things that cause headaches, brain tumours rank towards the low end, so you do not need to panic. Nonetheless, it is always better to be safe than sorry. A neurologist appointment will calm your fears, and help you to get rid of your headaches.

Paralysis, trouble swallowing, troubled vision, seizure or other problems like that are much more common as brain tumour symptoms. You see, a tumour can affect any area of the brain. Usually when it does, it will cause some kind of functional impairment. That means that if you are suffering from brain tumour symptoms, you will not be able to do something that you could do before. Perhaps you will have trouble recalling things all of a sudden. Perhaps you will have trouble speaking. Perhaps you will have trouble moving your body. No matter what the issue, all of these can be signs of brain tumour symptoms. And even if they are not symptoms of brain tumours, they are obviously serious enough problems that you should go and seek medical attention.

The thing about brain tumours is that they do have a way of making their presence known. Brain tumour symptoms are generally things that are severe enough that you would go to a doctor anyway. You don't need to worry about brain tumours per se. You just need to be willing to go to a doctor when you start to feel bad, sick, or abnormal. All the studies indicate that, whether it is brain tumours, cancer, or flu, early diagnosis can be a great big help. Make sure that you get treated as soon as possible if you feel unhealthy or have abnormal symptoms. Listen to your body!

For more facts and information on my meningioma brain tumour symptoms, visit:

http://www.mybraintumour.com

A Truly Phenomenal Woman

2012-01-17T18:17:00.009+02:00

Hi Everyone - Happy New Year

Hope you all survived the festive season!
I would like to share a story with you about a truly inspirational friend of mine; Alison.

Alison and I go back a long way to when we were both bank clerks in Newquay Cornwall and struggling to prove ourselves career wise. We were both pretty strong women trying to make our mark in what was a very male dominated profession.

We became good friends and share a very similar sense of humour and dogged determination. I eventually moved away from Cornwall but we always kept in touch so I was in shock and very sad to hear this time last year (Jan 2011) that she had had a Christmas and New Year in pain, eventuating in hospitalization, to be informed that she had cancer of the lymphatic system and that the mass was too large to be operated on and removed.

Surgery did however follow to decrease constriction of lower organs and this surgery was then followed by 6 months’ worth of chemotherapy.

During this time Alison was stoic in her fight to beat this situation and continued her work as Area Fundraising Manager with the East Anglian Air Ambulance. Alison went through good, positive days and bad, dark days when she felt like she had been swallowed into a black hole.

Chemo was undertaken but unfortunately showed little results and this was followed by high dose chemotherapy, drugs and then further surgery to enable these drugs to be administered. All in all this was a harrowing time for Alison and her family but she battled on using all that determination she used to show in her twenties.

Alison had to go through the trauma of hair loss also but she was not prepared to let this get her down. Determined to make the most of the situation, she warned all her friends that if she was going to have to wear wigs, they were going to be outstanding! So, for Halloween she did her bit.

Good News was the headline for seeing out the Old Year and welcoming in the New Year!
31st Dec 2011:
PET scan negative meaning the cancer is no longer active and she is in remission for the moment! The road ahead is still a long one as far as treatment goes but they can now use her own stem cells for a possible transplant and Alison now starts on a rigorous regime of treatment throughout this month (January 2012) to harvest stem cells and continue with high dose chemo.

Alison you are an inspiration to anyone going through a gruelling time and fighting cancer. I am so proud of you and I'm glad you are made of good old Cornish Granite. Don't quit my friend and remember the anonymous quote I forwarded:

"I wish I was a glow worm, A glow worm's never glum.’Cos how can you be grumpy when the sun shines out your bum!"
~Author Unknown~

I wish you a more peaceful 2012 with less pain and fear. Believe in yourself - You are truly a phenomenal woman!

Merry Xmas Everyone

2011-12-21T14:24:00.004+02:00

Enjoy the holidays everyone. I hope you all stay well and enjoy the festive season.

Another: Do Cell Phones Cause Brain Damage Article

2011-10-22T14:27:00.003+03:00

The debate is on once again so just to keep you up todate I will let you read for yourselves. This article is dated 21st Oct 2011 and follows a study published in the British medical Journal on 20th October.

A controversial debate I agree but as I said earlier, it still makes sense to me to use a hands free mobile or text and restrict useage to only when necessary.

http://news.cnet.com/8301-13506_3-20123665-17/do-cell-phones-cause-brain-tumors-debate-rages/

Enjoy the weekend everyone.

Brain Tumor Awareness

2011-10-20T17:40:00.001+03:00

Brain Tumor Awareness Ribbon Mouse Pad

Brain Tumor Awareness Ribbon Round Mouse Pad

Meningioma Symptoms Often Misdiagnosed

2011-10-20T17:00:00.003+03:00

GP's are often criticised for not detecting the symptoms of a brain tumour at an early enough stage and people presenting with many of the related symptoms such as vision problems and headaches could be put down to several other problems and conditions.

I was very lucky and my neurosurgeon was the first to make comment that he wished more doctors were like mine and acted quickly but my symptoms included a uncontrollable twitching leg nerve which suggested to my doctor something neurological and epileptic in manner.

I'm not suggesting that only people having seizures in the clinic waiting room will be diagnosed correctly straight away and I feel that maybe many doctors are criticised unfairly when you consider that brain tumours cannot be seen and are still a fairly rare condition. If you think that out of 1000 people complaining of similar symptoms that only one or maybe 2 would have a brain tumour it must be pretty difficult to get it right straight away each time.

I think the trick here is to make yourself heard and explain exactly what you are feeling and what is happening to your body. Its no good saying I feel a little tired this week and think I may need my eyes testing again because I'm experiencing a few headaches. Help yourself by monitoring what is happening. If you are experiencing anything that is unusual for you and you are concerned about it then be persistent and insist on it being investigated.

I have said it before in earlier posts but it pays to be in tune with your own body!

Meningioma Symptoms and Treatments

2011-10-18T10:49:00.002+03:00

I was left a comment on my video yesterday: http://www.youtube.com/watch?v=NnmGc678828 and the commentor made reference to the fact that they had seen a good video by a neurosurgeon but unfortunately did not leave us a link. I however, have one up my sleeve and although it is a long one (the video - not my sleeve) it is straight forward and very informative. Because my tumour was a meningioma I was anxious to get to the bit about them and just incase you don't have time to listen to the whole lot I thought I would summerize the innformation for you as it is of great interest:

Presented by Dr Thomas Steineke, at the Diagnosis Brain Tumor - You Are NOT AloneIII conference, 2009

Benign Brain Tumors from Al Musella on Vimeo.

The brain tumors mentioned in this video are as follows:
Benign Brain Tumours
Pituitary
Vestibular Schwannoma
Meningioma
Keyhole & Minimally invasive techniques

In Summary re Meningioma Brain Tumors
90% are grade 1 or benign
With these tumours - if they are able to take them all out - IT IS A CURE!
5-7% are atypical - ie more aggressive and can turn into a malignant tumour
3-5% are malignant

Incidence: 2 in 100,000 - instance rises with age
This figure is probably higher as many are not found until autopsy
Meningiomas are more prevalent in women

Risk Factors:
Neurofibromatosis II
History of radiation treatment
Cell phones ?? Not conclusive - use ear pieces (sensible suggestion)

Presentation - Meningioma Symptoms
Certain symptoms are associated with tumours in certain places.
Headaches
Fitting
Meningiomas symptoms are caused by the tumor pressing on the brain
Visual loss

Treatment:
If it is easily removed then you have A CURE
Unfortunately many benign tumours are in places that are not easy to get to i.e. behind the optic nerve
Observation and scans for - slow growing and small tumours
Surgery - larger tumours/symptomatic which have immediate and long term cure therefore less follow up needed
Gamma Knife - less than 3cm not near optic nerves with good long term control

Don't Like To Mention It, But....

2011-10-04T15:32:00.003+03:00

Don't like to mention it yet as it is only October, however it will be upon us before we know it and it's getting earlier each year so without further ado and because, as you know I love to promote this charity that does so much good, Christmas cards - There, I've said it (Sorry!)

Just ordered mine: http://www.braintumouruk.org.uk/shop/christmas-cards

Brain Tumour UK Fundraising Event

2011-10-04T14:54:00.004+03:00

Brain Tumour UK are hosting their largest fundraising gala to date in November this year and it looks like it's going to be spectacular. It's called : The Big Top Extravaganza

The venue is in central London on the 23rd of November and includes an evening of cabaret with Burlesque performers, breathtaking aerial entertainment. Truly a circus of top class entertainment, magic and comedy and a three-course dinner and dancing. This is certainly a night not to be missed if you plan on being in and around London at this time.

The proceeds of this event will fund research into paediatric brain tumours and Phil Tufnell, a leading patron for Brain Tumour UK will be in attendance together with other celebrities.

Tickets are £150 each or £1,500 for a table of 10 guests.

For more information visit:

http://www.bigtopextravaganza.co.uk

Or call the booking hotline on 0845 4500 386

Brain Cancer - Cat Parasite Link

2011-08-13T09:09:00.003+03:00

Don't know how many of you caught this last month but I came across this article whilst on the internet:

Published July 27, 2011

"An infectious parasite spread by cats may be a cause of brain cancer in humans, research suggests. The single-celled organism Toxoplasma gondii infects about a third of the world's population. Often it causes no symptoms, but the parasite can be fatal to unborn babies and damage the nerve systems of people with weak immune systems.

The new study shows a positive correlation between rates of infection by T. gondii and brain cancer incidence around the world. Scientists collected global data on brain cancers in men and women and compared them with figures on T. gondii prevalence. Adjusting for a range of factors that can influence brain cancer statistics, the researchers found that cancer rates went up with greater exposure to the parasite.

Across the range of infection prevalence, from 4 of the population, T. gondii was associated with a 1.8-fold increase in the risk of brain cancer. The scientists, led by Frederic Thomas, from the CNRS research institute in Montpellier, France, wrote in the Royal Society journal Biology Letters: "We feel our results are sufficiently strong to propose that T. gondii potentially increases the risk of brain cancer in humans." Previous research had already linked the parasite to brain tumours in animals. There is also other evidence that T. gondii has effects on the brain leading to changes in behaviour."

According to a comment following this article a reader commented that there is very little risk of contracting this from healthy indoor cats and he goes on to advise that the most common method of infection in humans is actually via the consumption of undercooked or raw meat.

Going Back Home

2011-08-13T09:00:00.002+03:00

Hi Everyone,

Well my time on this wonderful Island is nearing it's end for now. It has been the most fabulous experience all brought about really by the fact that following my meningioma brain tumour my whole life was put into perspective and I now believe that taking time out is a necessity to appreciate how great life is. We have had a ball! It was great revisiting with friends and showing my husband the beauty of this country and we have experienced peace, quiet and tranquility on an Island full of splendid wildlife, secluded beaches, laid back humour, long lunches and much pondering about how lucky we are.

We are lucky but we have made this happen and I look forward to returning again another year but for now it's home to Cyprus and the UK to visit our families and to reassess where we want to go next.

BRAIN TUMOUR NEWS FROM AUSTRALIA

2011-05-27T04:21:00.006+03:00

Just reading through a local paper here in Queensland last week and it reports that Brain cancer is the leading cause of cancer death in Australias youth and accounts for more than one third of cancer deaths in children under 10. One person dies from malignant brain cancer every eight hours in Australia!

These are alarming statistics. More awareness and funding is desparately required for further research as brain cancer research is the least funded but deadliest cancer in Australia today. A leading Neurosurgeons commented that it will take AU$50 billion over the next 30-50 years to find a cure for brain cancer but that funds are required urgently now to make an impact on reducing the alarming statistics above.

Once diagnosed, patients have just a 5% chance of surviving this extremely aggresive disease and most die within 12 months. Brain cancer remains the least understood of all cancers. Risk factors are unknown and there are no screening procedures in place.

A third of all other cancers can be prevented by us making concious lifestyle choices, for example by regular exercise, not smoking and eating balanced diets. However, brain cancer in indiscriminate and due to lack of research they do not know how to prevent it.

For more information on Brain Cancer Action Week and how to donate please visit: Brain Cancer Action Australia

Everyone Should Have A Chance!

Life After Benign Meningioma Surgery

2011-05-25T05:35:00.019+03:00

I am lucky enough to be over in OZ with my lovely husband for 6 months and we have taken an apartment on Magnetic Island, just off Townsville in Queensland.

One thing about having had a brain tumour is that it pulls you up and makes you think about what is important in life and how you should go about making the most of it. We are in the incredibly lucky position of being Internet marketers now and therefore as long as we have our laptops and can ensure an Internet connection we can continue to work from where-ever we are. I lived for 14 years in Australia in what now seems like the distant past, as so much has changed in my life and was desperate to come back for a visit, so my husband said at the end of last year that that is what we would do then - we would make it happen!

So I thought rather than some meningioma news this time I would share some of my photos of life in OZ with you because this is what life so beautiful and so worth living.

Your time is not refundable, spend it well!

Brain Tumour Research

2011-05-22T02:01:00.003+03:00

Wife & Mother goes extra mile for Brain Tumour research fundraising:

Watch the following video clip:

http://video.stv.tv/bc/news-20110415-brain2/

BRAIN TUMOUR NEWS FROM THE UK

2011-05-16T10:28:00.003+03:00

London Marathon runners raised a record amount of £80,000 for Brain Tumour UK. This record amount is a big boost to their efforts to help people affected by brain tumours.

Brain Tumour UK is the leading, caring charity committed to fighting brain tumours. Personalised support is available online, on the phone, by email and through friendly support groups. Their scientific research improves the quality of life for brain tumour patients and identifies better brain tumour treatments. They raise awareness to change things for the better for everyone affected by a brain tumour.

For more information: http://www.braintumouruk.org.uk

RIP Seve Ballesteros

2011-05-08T04:39:00.005+03:00

The death of Spanish golfer Seve Ballesteros on Saturday, 7 May 2011, of an aggressive brain tumour has focused the world’s attention on an illness suffered by many ordinary people in the world. Survival rates for malignant brain tumours are still low, with around one in ten adults surviving for more than ten years.

- Born April 9 1957, Pedrena, Spain -
Seve left his footprint on the sporting world on golf.
There will never be another golfer quite like Seve Ballesteros.
Perhaps no other sportsman quite like him either.
- 7th May 2011, Dies at home in northern Spain at the age of 54
due to respiratory failure.

A sad day and my condolences to the family. A brave battle was
fought. Rest in Peace Seve - You will be missed by many.

Continued research is vital to improving the lives of people diagnosed with brain tumours.

March Is Brain Tumour Awareness Month!

2011-03-12T09:27:00.006+02:00

Brain Tumour UK is the leading, caring charity committed to fighting brain tumours. They raise awareness to change things for the better, for everyone affected by a brain tumour.

Personalised support is available online, by email, on the phone and through support groups. They are also involved in scientific research to improve the quality of life for brain tumour patients and identify better treatments.

This is where I send donations to from the proceeds of my EBook 'My Brain Tumour'

If interested, please take the time to visit this very informative site for further information about Brain Tumour Awareness Month.

Are you aware? March is Brain Tumour Awareness Month so spread the word and direct people to this website so everyone can get involved.

Lobby your MP: Join Brain Tumour UK, other charities, patients, carers and healthcare professionals on 29 March at Westminster to present the manifesto for people affected by brain tumours to your MP and join them for a reception at Church House, Westminster. Email them on comms@braintumouruk.org.uk for more information.

Recent Meningioma Webinar - Guest Speaker Dr. Michael McDermott

2011-03-11T11:02:00.005+02:00

I don't know if any of you receive info or updates from The National Brain Tumor Society or The Brain Science Foundation but I recently called in to a webinar that was being co-hosted by them both and thought I would share with you a few of the Questions and Answers that were raised that I felt were very useful.

On March 1, 2011, the Brain Science Foundation and the National Brain Tumor Society co-sponsored an informational webinar specifically tailored to share information with Meningioma patients, their caregivers, friends and supporters, and health care professionals.

National brain tumor society and Brain Science Foundation

Guest speaker: Dr. Michael W McDermott from University of California. Professor in Residence of Neurological Surgery.

Dr. McDermott addressed such topic areas as epidemiology, treatment options, and current research initiatives. The webinar was meningioma specific and included a substantial question and answer period, covering a wide range of patient questions.

Question and Answer Session
Q1) After having follow up MRI's on an annual basis for 6 years with no change is it ok to extend the frequency of the MRI to every 2 years?

Answer: Yes - Dr.McDermott felt the lack of growth over that interval shows slow or no growth rate and advised that every 2 years would be ok.

Q2) Can diet/rest/exercise/medication or supplements prevent meningioma reoccurence or slow regrowth?

Answer:Dr.McDermott said he obviously recommended good diet, exercise and rest when needed as the norm but advised that there has been no conclusive evidence to show that these factors necessarily influence an improved outcome. More research required.

Q3) If you have more than 2 separate incidences of benign meningioma could the next one be malignant?

Answer: Two different situations here:
Same tumour that recurs twice in same location.
2 Different tumours in separate locations.

Dr McDermott explained that Benign meningiomas usually recur again as benign menigiomas but what is open to question is whether some of the treatments used to treat the first tumor may in fact influence a higher grade of meningioma in the second tumor. He states that the treatment risk compared to outcome of degeneration is considered very low.

Q4) What might cause multiple meningiomas in different parts of the brain?

Answer: About 5% of patients have multiple meningiomas on diagnosis and it is believed that in the absense of a history of prior radiation or therepy to the face or scalp as a child, this could be a genetic syndrome ie NF2(Neuro fibrosis) gene defect. Patients would be referred to a medical geneticist for confirmation.

Q5) Is there a link between meningiomas and Xray and if so should I be concerned about annual dental xrays and mamograms? (Great Question. One that I have asked myself!)

Answer: There is a link - usually where the head and neck are concerned.
Past repeated panoramic dental xrays using less sofisticated equipment showed a slight increase in some areas. However, with present equipment the risk is very low and outcomes unknown.
Mamograms are far removed from the intercranial site and therefore the answer is no we should not be worried.

Q6) What are the side effects from meningioma radio therapy treatment and what is the risk time-line for these?

Answer: Risks are dependant upon tumor location and volume of treatment required

Acute side effects: short term side effects - hair loss, redness of the skin, loss of energy, fatique and temporary swelling of the brain.

Any permanent damage is less than 3% dependant on tumor location.

Q7) What is the difference between Radio surgery and Radio Therapy treatments?

Answer: Radio surgery - delivery of larger dose of radio therapy in a single session.
Radio Therapy - small amount delivered once a day over a longer period of time.
Difference = Dose delivery and time administered.

Q8) What is the effect on reproduction oportunities for women. Does being pregnant greatly increase the risk of recurrence due to hormone changes?

Answer: Non conclusive - insufficient data available. More research required!

Q9) My daughter and I have both had meningiomas - are they hereditary and should we worry about other family members?

Answer: 1st degree relatives(i.e. Mother - son/daughter or siblings) - A Medical Geneticist referal would be recommended to check for NF2 gene deletion.

Q10) With a craniotomy is scalp pain and numbness common and if so when will it subside?

Answer: Pain and numbness is location dependant - SENSORY nerves are cut through DURING SURGERY but will regenerate. Patients will notice sharp shooting pains on head movement and chewing initially and a duration of 3-6 months is typical.

NB. As a personal note to Question 11, my meningioma was surgically removed from the top of my head and my experiences were itching (due I thought to the healing process) but I still have severe itching periodically. The strangest sensation I experienced was a slight upward movement of the skull plate when sneezing. This has thankfully stopped but there were times when I was sure I was going to sneeze the top of my head off and actually used to place my hand on top of my head if I knew a sneeze was immminent :D

Hope this was a useful exerices for some of you.

Meningiomas More Common In Women!

2010-11-10T13:06:00.004+02:00

Meningiomas account for approximately 44% of all intracranial tumors in females and 21% in males. 74% of all diagnosed meningiomas occur in women. They are the only variety of central nervous system tumor diagnosed more often in women than in men and can oocur at any age but seem to be more prevalent in women over 40.

So, the obvious question to the above facts would be why more in women than men? We know we are diffeerent so surely there has to be an outstanding reason?

The only known risk factor for meningiomas is previous exposure to ionizing radiation of the head, such as being exposed to the radiation while being treated for a previous brain tumor. It has also been discovered that there is a correlation between the disease Neurofibromatosis and meningiomas. I was also advised that it could possibly be a chromosomal abnormality but due to so many not being diagnosed and the lack of funding for research in this area the reasons are largely unknown.

What we are told is that there is certain evidence that elevated levels of female hormones may promote growth or regrowth of meningiomas and these facts could account for the percentage rates above.

It could be that whilst we thought we were taking a proactive stance in looking after our bodies ladies, in a controlled fashion, the benefits of such hormonal medication as birth control, infertility treatments, hormone replacement therepy may be outweighed by the risks for a percentage of women and these medications should certainly be discussed fully and carefully for any women who have previously been treated for a meningioma.

Are Meningiomas Common?

2010-11-03T18:49:00.001+02:00

Meningiomas are the most common type of primary brain tumour, accounting for approximately 34% of all primary brain tumours diagnosed. A surprising fact is that 2% of routine autopsies reveal primary brain tumors that have been undiagnosed putting the stated figure of 34% on the low side!

What Are Meningiomas?

2010-11-01T11:06:00.004+02:00

Meningiomas are tumors that grow on the delicate outer covering of the brain. This covering is called the meninges.

If you have just been told that you have a brain tumor you are probably still in shock and trying to process the information. For me, I felt like everything in my life had turned upside down and nothing was making any sense. I had so many questions; am I going to die or can it be cured? What are my options for treatment, will I still be able to function as I am now? What are the risks and after effects? How do I tell my family? And what the heck is a meningioma anyway, why have I got one and how did I get it?

I had never known anyone else who had been diagnosed with a brain tumor so the first thing I did was to try and hold it together and set about finding out as much as I could about this diagnosis. Amazingly, I found that thousands of people are diagnosed with meningiomas each year! So, I was not alone and it appeared that many have successful treatments and continue on with a productive and satisfying life.

A meningioma tumor develops from the meninges, the membrane that surrounds the brain and spinal cord. The mininges are made up of three layers, called the dura mater, arachnoid and pia mater. Most meningiomas are benign tumors. However, this benign brain tumor is unlike benign tumors elsewhere in the body and if they are located in a position that is difficult to access can be life threatening or cause disability. Most benign meningiomas appear to grow slowly. I was totally unaware of mine, which was 3cm diameter when removed. I was made aware of its presence because it was fighting for space and pressing into my brain which began affecting another part of my body which was concerning enough tonecessitate a visit to my doctor. Although most people develop a single meningioma, it is possible to have several tumors growing simultaneously in different parts of the brain and spinal cord. To follow my story in full take a look at my book 'My Brain Tumour'.

Russell Watson News

2010-10-30T14:55:00.003+03:00

Russell Watson

Hope you all saw the Russell Watson interview with Piers Morgan. It was very moving and it was great to see Russell's daughters in the audience. It is fabulous to see Russell looking so well and also to see that he is now in a new relationship. I wish him all the best for a tumor free future and lots of good wishes for the up and coming tour and new album 'La Voce'.

Russell was recently put under the microscope in a Daily Mail interview which revealed a little of his life after brain surgery:
Question:
Do You Pop Any Pills?

Answer:
He has regular medication along with a hormone injection at night. His pituitary gland was damaged by the brain tumour and sufficient growth hormone and hydrcortisone are not produced.

Question:
Have you tried alternative medicine like say acupuncture?

Answer:
No. This was mentioned to his endocrinologist who's reaction was to turn a pale colour and comment that this would be OK if he wanted to be dead.

Christine's Message

2010-10-14T14:30:00.002+03:00

Newly Diagnosed

2010-10-07T11:56:00.004+03:00

Hi everyone

I've recently heard from Christine who has been diagnosed this year. Your journey begins here Christine and I wish you a very safe one with a very happy outcome. xx

GREAT NEWS!

2010-07-28T13:29:00.003+03:00

Went for my MRI last Friday and picked up the results Monday. I think from the big smile on my face you can see the outcome. No sign of a brain tumour anywhere in there I'm pleased to report. I can settle again now until the next time I feel the need to banish the niggles.

My fabulous husband took me out for a lovely meal - seafood platter no less all washed down with a beautiful bottle of Barollo - yummy!

Updated Info? - Not Really

2010-07-28T12:32:00.002+03:00

I read today that there has recently been an Interphone project carried out to study, once again, the possible effects of long-term heavy use of mobile phones and the increased risk of glioma or meningioma.

The International Journal of Epidemiology concluded that the topic still requires further investigation and the authors make it clear that there was insufficient data for a clear interpretation.

The main concern here is the heat generated by cell phones, believed by many as being a cause for pre-cancerous changes resulting in brain tumours. The recent study did show though an increased risk in the highest use group i.e. phones used for more than 30 minutes per day.

What are the flaws of the study?
a) A possible conflict of interest as a percentage of money to conduct the project was supplied by the phone companies.

b) Out of date results. The study centered on exposure during the 1990s and resultant brain tumours between 2000 and 2004. We are now 2010 and I personally feel usage has increased considerably and to rely on peoples recollection of their phone usage during this time is probably difficult and unreliable.

c) Data of child usage was not taken into account for the study. An important group because of their developing brains and their high usage.

It would appear therefore, as per my previous report, that the jury is till out! The UK has launched a larger study and will collect data from 250,000 people over a period of 20 to 30 years so we will have to await results.

So readers - you tell me what you think!
I am still of the opinion that the bottom line is that it would still make sense to limit prolonged use of a mobile phone and to use a headset - I have been doing this since my surgery as my precious brain tells me: -

WHY TAKE THE RISK WHEN YOU DON'T HAVE TO!

4th Anniversary Today!

2010-07-19T17:57:00.003+03:00

Well I'm still here and feeling great. 4 years ago today I was under the knife and my whole life (not to mention the lives of all around me) was in complete tumoil.

I think that at the time of writing I was just coming round in a whoosy state not quite sure if I was going to be the same person. Well, I actually don't think I am exactly the same person as I was. The whole experience changed my perspective on life, made me think about what is important and what's not but most of all made me really appreciate all that is around me and the people who are in it. Don't believe I don't sometimes lose my cool because it would be crass of me not make you believe otherwise but I do certainly think I have mellowed and try to follow the old cliche of 'living life to the full'.

It's now time for me to raise a glass to celebrate another year of good health and wish all of you that may be fighting a harder battle than was mine all my best wishes.

Bottoms up!

Hi Everyone - Not Been Here For A While

2010-07-15T13:38:00.003+03:00

Hi Again

I can only be held up as an example of someone that is enjoying life so much that I honestly haven't had a great deal of time to come back and update this blog. However, a few things have occurred recently that have made me check back and add a few notes.

#1. It will be my 4 year anniversary on the 19th of this month and although everything is brilliant in my life I feel for my own peace of mind it is time for another MRI just to make sure. I know I am paranoid and everybody tells me that this is unnecessary but just to quell the niggle and the occasional throb in my head I will make my appointment next week.

The thought of this always makes me teary and to be honest quite scared. I will welcome with great glee being told all in clear but what if the demon is back?

#2. I learnt with sorrow this month that a male friend who lived in the same village as me in Cornwall over 10 years ago had been diagnosed with a brain tumour. Unfortunately I do not have the full facts as to what type of tumour he has or where it is located but he has recently had surgery and the outcome is not fabulous. They have only been able to remove a third of it and he has been told it is an aggressive strain. This left me very sad for my friend and also pondering whether there could be any chance of an environmental correlation. He has always lived in this village as far as I know but I only lived there for about 8 years. So if anyone has any comments on this possibility I would love to hear about it.

#3. And, last but not least, my beautifully cool God-daughter Sarah has some GCSE coursework to complete and guess what her subject is? Brain Tumours and the possible link to mobile phones! So Sarah, my lovely take a look at the entry in older posts under Sat June 28th 2008 at the time there was great discussion on the subject. You might also be interested in reading older post: Nov 7th 2008 but there should be plenty of stuff on the blog to help you out. And, don't forget you said you would let me have any info you have on the Cornwall situation. Love and kisses - Auntie Lynda x

I will be back within the next two weeks to let you all know the outcome of my MRI and in the meantime stay well and happy everyone.

Meningioma Symptoms

2009-05-30T17:19:00.003+03:00

This very tricky brain tumor still has the researchers baffled and no-one has yet conclusively shown why they appear or why they choose their victims.

What is apparent though is that nobody has the exact same experience or meningioma symptoms which also make it tricky to diagnose. Having read through meningioma survival stories and spoken to neurologists it would appear that everyone has a different story to tell. The one thing that they did all share though is the emotion of shear panic when the diagnosis if confirmed.

Meningioma symptoms are very varied due to location and what body parts or functions are being affected in that part of the brain. Before they become troublesome, many people have subtle symptoms, experienced over a long period of time, that they do not associate with brain interference and are often surprised when the meningioma is diagnosed.

Meningioma symptoms such as memory loss, carelessness and vision blurring are also problems many people have to put up with as they get older and therefore these symptoms alone would not necessarily alert us to any major problem. Meningiomas may cause focal neurological defects and these are the symptoms that often send us to the doctor initially:
Arm or leg weakness
Seizures
Constant headaches

Other meningioma symptoms that may be passed by as insignificant on their own are:
Hearing loss
Loss of smell
Loss of sensation in the face
Vision Loss or visual problems

All these symptoms are caused because of increased pressure or restriction of the related function in the brain. The meningioma is fighting for space as it grows and if it is benign (non cancerous) and slow growing, can become fairly large before any symptoms become apparent. Appropriate treatment options are dependant on location but surgery is recommended if accessible to remove all or as much as possible of the meningioma.

A meningioma is a tumour of the meninges. The meninges are protective membranes around the brain and spinal cord. 90% of meningiomas are benign, 6% are atypical, and 2% are malignant. Research so far has shown that meningioma brain tumours are more common in women than men and seem to be more prevalent in the 40 - 60 year old age group. Research continues to be carried out into the possible causes of meningioma as at the present time, as with most brain tumours, no conclusive cause has been found.

The majority of meningioma brain tumors are benign - the word benign is misleading in this case as, when benign tumours grow and constrict the brain, they can cause disability and even be life threatening if not treated.
Take note of what your body is trying to tell you. If you are experiencing any strange or unusual symptoms that you are uncomfortable about, a visit to your physician is always the best remedy.

First seen at Article Source: http://EzineArticles.com/?expert=Roy_H_Carter

A Meningioma Brain Tumor Diagnosis Needn't Be the End of the World!

2009-05-21T18:50:00.005+03:00

I thought I'd share with you a few articles written by my husband over the last year.
First seen at : http://EzineArticles.com/?expert=Roy_H_Carter

........................................................................................................

Let's face it, on the list of scary things that can happen to someone, being diagnosed with a meningioma type brain tumor has got to be pretty high on anyones list. But, whether it's happened to you or to a loved one, a meningioma brain tumor diagnosis needn't be the end of the world.

In the summer of 2006 my wife was suffering from involuntary spasms in her leg. She initially thought this was probably a trapped nerve in her back, (Note to reader:- Unless you're a doctor, self diagnosis is a big no-no)!

When this started to happen on a fairly regular basis it became more than a little annoying and so a trip to the doctors was arranged. Thankfully we have a very good doctor who decided as a first option rather than a last one, to arrange an MRI scan. But an MRI scan on the head and not her back, where she had thought the problem may be!

The MRI scan was carried out and being rather optimistic by nature, we both thought that it would reveal nothing and that it would then be a case of physiotherapy or some such treatment. What happened next changed our lives overnight. A meningioma brain tumor was diagnosed as being the cause of the 'kicking leg' effect.

To say we were both shell shocked would be an understatement. When someone tells you you have a brain tumor, the automatic first thought is that you are going to die. Period. I know that was true for my wife and I'd be less than honest if I said that it wasn't the first thought in my head as well.

I believe it is the case that benign meningiomas are far more common in women than they are in men. The fact is though, that a meningioma type brain tumor can be one of the most operable type of tumors there is. Also, they are most often benign, which was the case for my wife.

After the initial shock had subsided a little, we started to try to think positive again. We made an appointment with the neurosurgeon and my first question to him was, "how much pain will my wife experience?" His answer came as quite a surprise.
"No pain", he said. This man was exactly the sort of person you would want if someone was going to open up your skull and start delving around inside! He was the epitome of the word 'calm'. He exuded such a relaxed attitude to the whole affair that he instilled a great deal of confidence in both of us. We both began to feel that perhaps a meningioma brain tumor diagnosis was not going to mean the end of the world after all.

And so it proved. The 5 hour operation was a completed success. The meningioma was removed in one piece and after a few days in intensive care my wife was moved to a general ward area of the hospital to complete her recovery.

I kept asking her if she was in any pain and always the answer was "no". In fact we now look back and laugh at the fact that the most pain she experienced during the entire hospital stay was indigestion from the hospital food!

Within 10 days my wife was back home and the day after that she was back working on her computer. I tried to stop her but she wanted to do it, saying she was bored and just wanted to get back to normal.

So although it's a very scary thing to be told - A meningioma brain tumor diagnosis need not be the end of the world.
You Can Read One Woman's Uplifting Story Of Her Meningioma Brain Tumor Diagnosis (and recovery) at http://www.mybraintumor.com/

Article Source: http://EzineArticles.com/?expert=Roy_H_Carter

Good Positive Vibes Required

2009-04-13T18:37:00.004+03:00

I recently received some communication from Lesly following a post and felt it appropriate to reply and send lots of good positive vibes.

Thanks for the comment Lesly. I hope you are finding a way to remain as positive as you can. I was certainly shell shocked at the beginning with an overwhelming feelings of 'Why me?' and 'How did this happen?' but I learnt a great deal about human nature and how much people around you care and are prepared to help at a time like this.

You may find it helps to write down your feelings in note form at the end of each day. This helped me to come to terms with facts, think about and face any decisions that I had to make, whether they were treatment based or emotional. It was also what brought about the E-book afterwards.

The E-book , which believe me relates a total roller coaster of emotion was actually quite difficult to write as it brought back many memories and made me revisit the fear of the situation. But, it also made me giggle and smile to recall the funny and loving moments and the biggest opportunity it presented was a huge platform to say thank you to the fabulous people around me.
Big hugs from me to you Lesly.

Meningioma Brain Tumour Diagnosis Is This A Time For Rest and Relaxation?

2009-03-15T16:41:00.003+02:00

Scary, You bet your life it is! However you have received this news, it has to be a shock to your whole system. This turbulent time, following a brain tumour diagnosis, often leaves people with little, or at best troubled, sleep. Waking hours can be filled with anxiety where you are in the unfamiliar territory of hospitals, brain scanners and facing your own demons. Putting on that brave face, masking your fears or meningioma symptoms, to protect family and other loved ones is exhausting and can leave you emotionally drained.

It is essential that you have the strength to meet these challenges both physically and emotionally. You may have to make some of the most important decisions of your life right now, and you need to face these decisions with clarity, despite the upheaval all around you.

There are countless tried and tested methods of relaxation from lavender pillows to yoga. Many will be available to you in some guise or other, via your local community or through a simple internet search. However, some of these techniques take time to master and learning a new skill at this time may not be such a relaxing experience.

Giving yourself time to think, is every bit as effective. This does not mean time to worry, get agitated or drown in self pity. It means allowing yourself time to digest all the meningioma facts, how you feel about it and setting your resolve to deal with it.

In a stressful state your muscles tighten, all over your body. This is incredibly energy sapping and makes sleep almost impossible. All this is in addition to any meningioma symptoms that you may be experiencing. A walk along the beach, a quiet place in the park or a place that is special to you can provide the perfect atmosphere to remove you from your suddenly acquired stress inducing, thought-clutter. In a relaxed state, your rate of breathing slows, your blood pressure reduces and importantly, your muscle tension decreases.

It has long been accepted that a good sleep is a great panacea. It gives you more energy, now more than ever you need this to deal with your day. You really don't need a common cold on top of your brain tumour, and better sleep increases your resistance to viruses. If you are better able to concentrate after a reasonable sleep or a period of quality relaxation, then you are better placed to take control of what is happening to you and you will feel less vulnerable.

This special relaxation time does not need to be spent alone, but it is better to be away from situations that cause your stress, and don't forget, the people that you love the most may be the ones that you feel most stressed about sharing the details of your meningioma brain tumour with. If you are rested and relaxed, your emotions more stable so you have a better chance of sharing with and keeping close, the people most important to you.

Ultimately, the most important issue is that you understand your meningioma brain tumour - and for that you need a clear head!
------------------------
If you would like to read more about one woman's fascinating and uplifting story and discover how she coped with her brain tumour from diagnosis through to recuperation, you can obtain her Book here: http://www.mybraintumour.com
Source: http://www.submityourarticle.com/
Permalink: http://www.submityourarticle.com/a.php?a=46769

Progress In Fighting Brain Tumours?

2009-01-07T19:54:00.003+02:00

Why Has There Been So Little Progress In Fighting Brain Tumours?
It is a fact that brain tumours account for less than 2% of total cancers which makes them relatively uncommon when compared to other cancers such as lung, breast and prostrate cancers.

Because there are so many different subtypes, requiring different treatment strategies screening for them, as they do for breast and prostrate cancers is almost an impossible task.

Due to the above situation and the different subtypes, funding is harder to obtain and therefore clinical trials that would eventually lead to more rigorous testing are fewer.

I believe there has also been less exposure in the media in the past, but of late we have seen a prominant figure and celebrities that have been diagnosed, namely Kennedy, Russell Watson the singer and Sevi Ballesteros the golfer. These prominant figureheads have drawn the publics attention to the brain tumor problem but public education is not high on the agenda and few people unless actually diagnosed or affected indirectly by the diagnosis of a family member or friend, are really aware of symptoms, treatments and long term results.

A good website to visit to obtain further information on what is going on in these fields is: www.virtualtrials.com

Happy New Year Everyone

2009-01-05T16:51:00.002+02:00

I read an inspiring book over the Christmas break and felt quite humbled by it.

It is a book about how life suddenly changed overnight for a guy who was 38 and suffered a brain lesion. His book, like mine, takes you through his experience of events. I felt sorry for him, angry for him, understood fully his hospital fiascoes and what I ended up feeling was proud of him, for his determination, perseverance and being able to keep a hold of his wit and long term vision throughout the nightmare.

The book for anyone interested is called:
'I Think There's Something Wrong With Me' by Nigel Smith.
An enjoyable, thought provoking read.

Track Santa Around The World Tonight

2008-12-24T16:24:00.004+02:00

Santa Tracker Will Tell You Exactly Where In The World Santa Is Right Now!

Santa Claus Tracker!

http://www.noradsanta.org/

A very Merry Christmas everyone. Hope he reaches you in time!

Gene Link Found - Brain Tumour Research

2008-11-07T16:19:00.002+02:00

Research published in the latest edition of the Journal of the National Cancer Institute reveals that a mutation has been discovered in a DNA repair gene which may increase the risk of developing the rare type of brain tumour called Meningioma.

More than 7,500 people are diagnosed with malignant or benign brain tumours in the UK each year. Meninigiomas account for over 30 per cent of these, yet little is known about the cause of the disease which tends to affect older people, and women. It is reported that the mutation found in the DNA repair gene may account for 16 per cent of meningiomas.

The new study examined genetic differences in the brains of people from four European countries. Data from patients with meningiomas was compared with healthy individuals and a new region associated with meningioma risk has been identified.

This research into gene changes offers progress towards early non-invasive diagnosis of the disease as opposed to the present situation where biopsy is the only true diagnosis.

Interesting results. Well done Cancer Research UK. Take a bow and keep up the good work.

Seve Ballesteros

2008-10-25T11:04:00.003+03:00

Pleased to read in the papers that Seve's 6 1/2-hour operation yesterday went to plan. The swelling was reduced and the remains of the tumour was removed. He is now in intensive care and in a stable condition.

Well done to the neurosurgeons and medical staff and speedy recovery Seve!

FOLLOW UP MRI'S

2008-10-25T10:50:00.003+03:00

Hi everyone

I have had a comment on my blog entry for yesterday. It is a question relating to the post from 26th August, regarding why I felt it necessary to have a follow up MRI exam. First may I say CONGRATS to 'smashedpea' for tomorrow - 2 months since removal. I hope you are feeling well.

Have a look at my post for August 15th for my reasons for a repeat MRI. You being told that you do not need another actually makes me feel more confident as I was told the same, but if you read my Ebook, you will see that I have a very active imagination and for some reason feel I know better than anyone else.

My surgeon didn't even feel it was necessary for follow up appointments after I went home unless I felt it was necessary. He gave me his phone number and said I could contact him anytime, so I did a year later when I took him a bottle of bubbly and he was most surprised to see me.

So I suppose the answer to the question is that I didn't need to have another MRI - I chose to have one due to an insecurity thing I suppose. Maybe your surgeon just wants to prove to you that it is all gone and that you can now get on and enjoy your life. It did make me feel better and I will now leave well alone.

'GOOD LUCK SEVE'

2008-10-24T11:51:00.003+03:00

Good Luck Seve - my thoughts are with you and I hope for you a speedy recovery to good health.

Seve Ballesteros (Spanish professional golfer and former World No. 1) has this month been diagnosed with a cancerous brain tumour classified as an 'oligoastrocytoma'. A tumour type that affects cells that cover and protect the nerve cells in the brain and spinal chord. Most oligodendrogliomas occur in adults ages 50-60 and are found more often in men than women.

Type: An oligoastrocytoma is a type of mixed glioma
Symptoms: May include headaches, speech, motor or behavioural changes and seizures.
Treatment: Removal of as much as the tumour as is possible with follow up treatment that may include chemotherapy and radiation therapy.

Seve will undergo another operation today to relieve pressure caused by swelling and a recent hematoma. They also hope to remove further tumour remains.

I wish you good fortune in what will no doubt be the most difficult match of your life. Be strong and stay positive.

Happy Birthday Mum (29/9/31 - 30/9/84)

2008-09-29T10:40:00.004+03:00

Today I remember my Mum. The best Mum in the world, obviously!
My Mum died far too early in her life, aged 53. It always serves as a reminder to me to live life as if tomorrow was your last day, make the most of what you have and be grateful, don't sweat the small stuff, be true to yourself and try to make a difference in someone elses life.

Meningioma Facts

2008-09-29T10:32:00.002+03:00

Meningioma Tumours are fairly rare and account for 30% of diagnosed tumours in the UK each year.
90% of meningiomas are benign, 6% are atypical, and 2% are malignant.
The word benign is misleading in this case as, when benign tumours grow and constrict the brain, they can cause disability and even be life threatening.

Brain Tumours and Driving Regulations

2008-09-28T17:13:00.003+03:00

Found some very interesting stuff recently which could be very important to some of you. I'm sharing this info because nobody mentioned it to me at all.

I have found that there are strict rules laid down by the DVLA (Drivers and Vehicle Licensing Assoc.) regarding epilectic fits and Brain Tumours. Now, bear in mind that the hospital will not contact the DVLA, but it is your responsibility to do so and your doctor will advise you how to go about this.

If you have had an epileptic fit, the Drivers and Vehicle Licensing Association will not allow you to drive for a year after your last fit and this period of time may be increased depending on your own circumstances and medical assessments.

If you have a benign meningioma (which is what this particular blog concentrates on) and have not had any seizures, the DVLA requires that you do not drive for at least six months after surgery. No-one made me aware of this and I'm not sure if I was supposed to know this sort of thing and whether it would have affected my insurance - but I didn't and I did drive. So this is why I am telling you, just in case :D)

If your occupation involves driving vehicles, such as a LGV (large goods vehicle) or a PCV (passenger carrying vehicle) you will not be able to drive for at least five years after surgery. If you have had any seizures you will not be able to drive this type of vehicle until 10 years after your last fit.

I'm not sure in the circumstances that you would feel it appropriate to take the risk anyway but in some instances you may require a medical assessment before your driving licence is renewed.

MRI Results

2008-08-26T12:41:00.007+03:00

The exam was complete and I nervously asked the technologist if all looked good and clear. As is the usual procedure, she advised that the Radiologist had been down to have a quick look and had been out to speak to my husband.

The pulse quickened and my mouth went dry until I saw her smile. She obviously sensed my concern and fear and smiled the smile of relief and success, not the smile of sympathy or concern. This girl had been on the same path with me 2 years earlier and knew what they had found then so she must have felt a small amount of exhilaration that the images were clear. I cannot imagine what turns up in their day to day examinations. Nobody likes to be the bearer of bad tidings. They operate the equipment that is advanced enough to help diagnose a problem. Discovery is one thing, fixing it is another!

I left the MRI suite to be greeted by my smiling husband Roy. All clear he said - NO BRAIN TUMOUR - congratulations! Once again I burst into tears, but of relief this time! All that was left was to pick up the report the following day. I had studied the pictures in disbelief the first time so was really looking forward to looking at the new set.

ABSOLUTELY FABULOUS!

MRI Examination

2008-08-16T13:46:00.003+03:00

Off I toddled for my 5pm appointment. Once again, my husband was at my side, feeling just as anxious as me, I have no doubt.

The procedure seemed very straight forward this time. A canula was inserted into a vein in my hand ready for the contrast dye. A very sweet male nurse showed concern at having to do this to me and was very sympathetic to the fact that I may feel a little discomfort. The old hand that I am, I chuckled and assured him that a small jab in the hand was nothing but I appreciated his bedside manner.

Everyone was pleased to see me looking so well and couldn't believe it had been 2 years since removal of my benign meningioma tumour.

Funnily enough, I arrived feeling far more nervous this time than I did last time when I had no inkling of what the results would be.

All jewellery was left at home, I put on the fabulous hospital gown, was strapped in to the head cage and ready to go.

The familiar clicks and knocks started and half way through the procedure the contrast dye was administered. It took about 40 minutes this time and I started to think about the results as I was laying there as still as possible.

If it's all clear I would be ecstatic and would stop thinking about it all again for a while but I began to feel like I was teetering on a precipice because if it wasn't, it would all start again.....would it be in the same location, what kind of tumour, what treatment would be possible and oh, so many questions not to mention the fears.

You also start asking yourself the "why me" question and the sad thing is research has still not come up with anything conclusive.

Why Another MRI?

2008-08-15T12:28:00.004+03:00

I think it was the Russell Watson story that unnerved me a little. 'Regrowth of a previous benign brain tumour!' Now once again, the whole story will not have been reported and they may not have removed the whole of the initial tumour like they did mine - but let me tell you, it doesn't take a lot to knock your confidence when you are dealing with something as scary as a brain tumour experience and I never feel totally confident about anything until the proof is in my hands.

So I sat down and rang the hospital and told them I wanted to come in again for another MRI. Nobody deterred me. I thought I would probably have to wait a week for an appointment but they said they could see me at 5pm that day. Well I have to share with you that I said, 'thank you. I'll see you at 5 then', put the phone down and promptly burst into tears. Madness I know, but that meant that I had to front up to the issue fully again with the possibility that I may not feel so chirpy again tomorrow once I had the results.

Believe me, I'm not a pessimist! My anxiety levels just rocketed.

MRI (magnetic resonance imaging)

2008-08-14T17:20:00.003+03:00

I thought I'd show you a picture of what an 'open' MRI machine looks like. Some of the closed machines are a little more scary than this and some people feel a little claustrophobic during the process. What they will do is place your head in what looks like a cage and put a strap on your forehead so that you keep perfectly still.

The scan will take between 30-40 minutes. MRI uses magnetism instead of x-rays to build a detailed picture of your head. It is in no way painful and the only discomfort is in the fact that you will be asked to lie very still for this period of time. They will play you some music and I'm sure if you take your own favourites in they will play them for you so it's best just to relax. Once the process starts you will hear a series of what to me sounded like clicks and knocks.

You will be alone in the MRI room but the technician will be able to see and hear you and therefore if you need to attract their attention you only have to speak and a two-way intercom will pick you up.

I was given an injection of dye into a vein in my hand by way of intravenous needle, to produce a better evaluation of the images. This is like any other injection really and causes very little discomfort. The contrast is called gadolinium and does not contain iodine and is therefore less likely to cause allergic reactions.

Leave all your jewellery at home because these will have to be removed as they can interfere with the magnetic field of the MRI unit. You will usually be down to underwear and gown so will not have items such as zippers but be aware of items such as hair pins, hearing aids and removable dental work.

It is important that you remain perfectly still while the images are being recorded, which is typically only a few seconds to a few minutes at a time. You will know when images are being recorded because you will hear tapping or knocking sounds when the coils that create the magnetic field are turned on. You will be able to relax between imaging sequences.

The benefits of this technique is that it is noninvasive and does not involve any exposure to radiation. Where brain tumours are concerned the MR images are the most sensitive examination method as they are usually clearer and more detailed.

2 YEARS ON

2008-08-11T18:23:00.003+03:00

I thought it was about time I did a little follow up to the Eviction day to stress that it is 2 years on. Whilst writing my Ebook I have learnt a great deal about this mystical tumour and I have also read many peoples stories. We read a report or something crops up in the news and it rarely gives the whole story. You may read a caption like 'The Use of Mobile Phones has been linked to Brain Tumours'. Well as you can see from a previous entry of mine on this very subject, this headline is true but slightly misleading.

You may be like me, and as far as I thought about it prior to my own diagnosis, I really didn't know there were many types of brain tumour and in fact had never heard of a Meningioma. I certainly didn't want to think about the possibility of having one and didn't know that there were different grades and that some were benign and some were cancerous. I just truly thought that they were all something that nobody wanted because they spelt out a definite dangerous situation.

So having painstakingly read through as much information as I could I came to the conclusion that it would be a sensible thing to have a follow up MRI test this year even though my Neurosurgeon felt it was totally unnecessary.

Eviction Day

2008-07-19T18:38:00.004+03:00

July 19th 2006

Well....It's been a strange day as I tried to think at different stages of the day what was happening to me two years ago. I spoke to my sister at about 11am and told her what day it was. She said at that time I was definately on the operating table with my sun roof open!

My husband rushed over and gave me a big hug and kiss at 2:15pm and said you are out of surgery now and I'm so relieved I feel I can breath again. What a day!!

I feel kind of exhilerated and excited and better go and get my glad rags on 'cos we're out on the town to celebrate tonight. I can see a nice bottle of red with my name on it!

Here's to the THIRD YEAR.
Cheers.

Pre Operation Testing

2008-07-17T17:21:00.004+03:00

17th July 2006 - Well I can't say that I'd ever like to go through those last few days in 2006 again. I'd been to see the Neurosurgeon and that was enlightening but the worst bit was letting my family and friends know about my diagnosis. No easy way to tell someone that you have a brain tumour is there really? Their shock matched my shock and luckily everyone remained positive for me. Thank goodness no one treated me as if I had been given a death sentence.

Good positive vibes is what you need at a time like that - so today (2 years ago) I went for pre-operation tests. You know the ones, blood pressure, xrays, ECG. I passed on 2 out of 3 and received a royal telling off for thinking I could treat myself.

It was back home on a high dose of medication to sort myself out! My guilt was incredible!

How It All Started

2008-07-14T17:15:00.008+03:00

14/7/2006 - Having visited my doctor 2 days previously with a stange complaint I was back to see him again, not feeling ill but with a mystery complaint. That is when it all started and by the end of the day I was told I had my very own space invader.

So how do you know whether the strange things that are happening to you mean you have a brain tumour? The truth is we don't always recognise symptoms because people experience different things. Raised intracranial pressure can cause headaches, visual problems and vomiting. Mood swings and changes in behaviour are general signs of a brain tumour and many people experience epileptic fits as an early symptom. I don't think I experienced any of these but I did have something funny going on with my left leg!

My Birthday

2008-07-13T16:03:00.005+03:00

It was my birthday on 30th June and although normally this would be nothing too exciting to write home about, I am willing to share with you that it was my 50th Woo Hoo!!

Birthdays and anniversaries come and go and we either sing and shout or hide away for the day. I celebrated in the normal fashion but didn't go over board because I have an even bigger anniversary coming up next week and I really do want to sing and shout about that:

July 19th will be two years since I had my Brain Tumour Removed!

I certainly think that is worth a laugh!

Check back into my blog on Monday 14th and I'll give you a preview into my life two years ago.

Bye for now
Lynda

A Bit Of Brain Tumor Research News

2008-06-28T15:49:00.012+03:00

This year there have been a few items in the news worthy of note. This one did not, in my opinion, receive enough coverage:

The International Journal of Cancer, which is published online, reported on a study undertaken in Finland. This study backs up another research report into the increased risk of developing a brain tumour for many regular cell phone users.

The study firmly correlates phone usage with an increased risk of developing a brain tumour called a Glioma and it reported that the risk of developing this brain tumour rose 40 - 270 percent on the side of the head preferred by modern cell phone users who have used their phones for more than 2000 hours in their lifetime.

Now that fact alone will scare many people out there. Many of us have anxiety attacks if we suddenly realise we have left the phone at home and business' rely heavily on this form of contact. The interesting thing is though that the study shows that the risk was highest among people under the age of twenty.

We are cautioned by other scientists that this does not mean that as soon as you reach ten years of cell phone usage you will have an immediate tumour but there is a high risk of this showing up at a later date.

As is always the case where money is involved, the mobile phone manufacturers proclaim that their phones are safe having funded their own research, which is open to interpretation.

Personally, I feel that I will definately take a closer look at my phone usage and where possible make use of hand free options. Surely it makes sense? And parents should have some cause for concern about their children and teenagers. If it's not really necessary, why have one? Make it emergency use only! This decade, it's very grown up and cool to have your own mobile phone - I hope it doesn't become a regular trend to be comparing brain tumour damage!

This is not hearsay, this is the second study of its type and it firmly correlates cell phone usage with an increased risk of developing certain brain tumors.

Consider your options.
Regards, Lynda

So What is a Meningioma?

2008-06-20T18:05:00.002+03:00

Well, put simply, it is a tumor of the Meninges.

Where are the Meninges? The Meninges are membranes that protect our brain and spinal cords. They consist of thin sheets of body tissue and act as a protective shield to our brains and spinal cords.

Nobody has yet come up with a conclusive reason as to why they occur and research continues to unravel the mystery. Certain possibilities have been put forward, such as mobile phone usage and hormone replacement therapy recently, but as yet nothing is a certainty.

Research so far has concluded that meningiomas make up nearly 1 in 5 of all primary brain tumours, they are most common in women (A strike for me) and they are most likely to be found in people middle aged and older (Another strike for me - middle aged I mean!). Not a lot to go on really considering this affects a large proportion of the human race.

Meningiomas tend to favour the cerebral hemispheres of the brain but can start in any part of the brain or spinal cord.

On the positive side (the side I obviously favour), malignant meningiomas are VERY rare. Most meningiomas are benign (non cancerous) and grow slowly and the cells do not spread from the original site. It is often possible to completely remove meningiomas with surgery but it depends on the location and accessibility.

Until next time - Enjoy Today.

Chapter One - Setting the Scene

2008-06-16T19:15:00.008+03:00

EXCERPT FROM CHAPTER ONE:

'I have had very little sickness in my life and have never been in hospital for any reason other than to work as an admin clerk for 6 months. So, yes, you have it right, I have my tonsils and my appendix and I have never broken a bone in my body or had food poisoning or a baby. Remarkable isn’t it that I escape a hospital visit for 48 years? But, boy, when I do it, I do it big! No messing around!'
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After waking up one morning in Mid June, I stretched, as you do at the start of a new day and realised that certain parts of my body were out of control. A little episode that lasted all of 30 seconds, although it did feel like 10 minutes to me. So, what was all that about?

I found a very interesting video on 'YouTube' for anyone out there that may be confused about their brain tumour diagnosis. A consultant oncologist explains the difference between Benign and Malignant brain tumours and the treatment options. I found it very clear, to the point and with no jargon :-)

www.youtube.com/v/oY4UJjKOKb0&hl=en&rel=0&color1=0x5d1719&color2=0xcd311b&border=1" type="application/x-shockwave-flash" width="425" height="349">

See you later for further information posts on the mystery Meningioma.

Today Is The Day

2008-06-04T20:03:00.007+03:00

Hi everyone

Back again to tell you all my Ebook has today gone live for purchase. I'm looking to make as much money as possible for Brain Tumour Research so I hope you will find time to visit my website and consider a purchase. I promise you will find a full account of my experience from start to finish and hopefully you will enjoy a few giggles and some dramatic photos along the way. (It is an 'uplifting account' I promise)

Just in case you are wondering what this is all about, my Ebook is called:

My Brain Tumour - One Womans Uplifting Story

Here is the Introduction to give you some insight and I will post an extract from Chapter One next week:

INTRODUCTION

Hi,

My name is Lynda.

You are probably desperately searching for answers having recently been told that either you or someone very close to you has a meningioma. My thoughts and good wishes are with you all.

Your journey is just about to begin and the purpose of me writing this book is to share with you my journey in the hope that it will help you a little to understand the emotions, shock and sheer terror that such news brings and to offer some encouragement.

The one thing I have learnt though throughout my research is that nobody has the exact same experience and it is therefore my aim to include the resources to find good information and associations that have forums for you to ask questions of other meningioma survivors. Please remember what I said above though, that everybody has a different story and we all experienced different things. Your story will be different again and one of your best friends at this time will be your doctor. If you haven’t already, find one that has time for you, one that you trust and respect and ask as many questions as you need to.

Being diagnosed with a brain tumour is a nightmare. It turns your world upside down and is both scary and worrying for both the victim and their family. I use the word ‘victim’, because that’s how I felt at the time and I hope that by reading my story it will help you in coming to terms with your own situation.

My very happy world was hit by a thunderbolt on the 14th July 2006 when I was diagnosed with a brain tumour. I had a brain tumour; I had it surgically removed on 19th July 2006 and was back in my own home on 29th July, relieved that I had made it through safely, thankful for a second chance and wondering what all the initial fuss was about.

I don’t mean to be flippant in any way. I know that I was probably luckier than most with regard to the position of my meningioma, I had a fabulous doctor with in-sight, I had a top rate neurosurgeon, I had my hero and the love of my life by my side, I had the love of family and friends and I also had the will and determination to overcome this hiccup in my life. I am a survivor.

Take a look at the website for more information.....

I'll be back next week.

Regards Lynda

My First Post - Nearly Ready To Launch

2008-06-01T16:54:00.005+03:00

I am so excited. I have just completed my first ever E-book, all on my own, on my very favourite subject at the moment - my brain tumour and it will be ready for launch next week and hopefully making some useful cash contribution to brain tumour research.

I am really hoping it will help any of you out there in Blog land who may have been diagnosed or know someone who has because it is a very scary time and this is a positive account to offer you some encouragement. I will be back during the week to let you know more....